KEYNOTE PRESENTATION, SUNDAY, APRIL 28, 2019, 9:45-10:45 AM
HIT TALKS, HEALTHCARE, INNOVATION & TECHNOLOGY
Don’t miss a special HIT Talks plenary presentation. Addressing Health, Innovation and Technology, that will foster learning and provoke conversations about hospice palliative care.
Shattering the Silence: LivingOutLoud.Life – A Webspace for Young Adults and Teens with Advanced Illness
Simone Stenekes, RN, MN, CHPCN(C)
The New Age of Hospice Volunteerism: The Trauma Informed Volunteer
Rami Shami, BSc
“The Creators Care” – A First Nations Approach to Palliative Care in the Community. “Innovative” or “Reclaiming a Cultural Approach to Care”?
KEYNOTE PRESENTATION, MONDAY, APRIL 29, 2019, 9:00-10:15 AM
IMPROVE QUALITY AND ACCESS IN HOSPICE PALLIATIVE CARE, A PANEL DISCUSSION
Access to quality hospice palliative care has been a constant theme in Canada for more than a decade. Ontario has a robust hospice system, interdisciplinary palliative care outreach teams, extensive use of hospice volunteers, regional hospice palliative care networks, pain and symptom management consultants, provincial quality standards Introduced in 2018, and newly launched competency framework and health service delivery framework. Where have we made progress? What innovations are fostering better access and quality? Where are we falling short? What are the opportunities for improvement?
This plenary panel discussion brings together three individuals with extensive experience in healthcare and the media to share their insights and observation on these questions. Our expert panelists are Dr. Joshua Tepper MD, FCFP, MPH, MBA, CEO and President of North York General Hospital, Andre Picard, Author and Health Columnist at The Globe and Mail and Michael Decter, President and CEO of LDIC Inc., Author, Leading Healthcare Authority & Economist. The panel will be moderated by Jennifer Mossop of Mossop Communications. Jennifer is a communication and media consultant, and a former journalist and CBC TV news anchor.
KEYNOTE PRESENTATION, TUESDAY, APRIL 30, 2019, 9:00-10:00 AM
DR. GARY RODIN MD FRCPc – PSYCHOTHERAPEUTIC INTERVENTIONS IN PALLIATIVE CARE: FROM EVIDENCE TO IMPLEMENTATION
The prevention and alleviation of psychological distress in patients with advanced disease and their families and support for their personhood and sense of meaning has been a central goal of palliative care since its inception. However, more systematic attention has been paid in palliative care to physical suffering than to the psychological manifestations of distress.
Recent evidence, based on rigorous research, has demonstrated the feasibility and effectiveness of a variety of psychological interventions for patients with advanced disease. However, these interventions are still not routinely integrated into training or into the delivery of palliative care. The nature of these interventions, the evidence to support their benefit, and the potential for their integration into the practice of palliative care will be reviewed here.
An international training programme now underway to train palliative care providers in the psychological care of patients living with advanced disease will also be described. Its implications for improving psychological outcomes in patients and families early and later in the course of advanced disease will be discussed. Implementation efforts of this kind may help to establish global standards of psychological care and to ensure that there is appropriate resource allocation and training to support the psychological well-being of patients and families facing the inevitable challenges of advanced and progressive disease.
Gary Rodin is the University of Toronto/University Health Network Chair in Psychosocial Oncology and Palliative Care and Head of the Department of Supportive Care at Princess Margaret Cancer Centre in Toronto, Canada. Dr. Rodin is also the Director of the Global Institute of Psychosocial, Palliative and End-of-Life Care (GIPPEC) and a Professor of Psychiatry at the University of Toronto. He leads a clinical and research program on the psychosocial dimensions of advanced and terminal disease and on the development and evaluation of novel interventions to improve the quality of life and the quality of dying and death in this population. He also co-leads a research program investigating the will to live and the emergence of the desire for death in patients with advanced disease. He has published widely in these areas and is recognized internationally for his efforts to improve the rigor of research and the effectiveness and availability of psychosocial and palliative interventions.
CLOSING KEYNOTE, TUESDAY, APRIL 30, 2019, 1:00-2:00 PM
JEREMIE SAUNDERS – SHIFTING THE PERSPECTIVE AND STIGMA AROUND CHRONIC ILLNESS, MENTAL HEALTH AND DEATH
Hospice Palliative Care Ontario is thrilled to announce the closing Keynote Speaker for the 2019 conference. Jeremie Saunders is an award-winning actor, producer, and host of popular original Canadian media, including film, television, and podcasts. An advocate for grabbing life by the balls and never letting go, Jeremie also happens to live with the genetic lung disease Cystic Fibrosis.
Sickboy Podcast was born from Jeremie’s affinity for laughter, communication and education, Honoured as one of iTunes Best of 2015, Sickboy is produced and hosted by Jeremie and his two best friends Taylor MacGillivary and Brian Stever. Together they explore a variety of topics with a wide range of guests, talking and laughing about the experiences of living with a chronic or terminal illness. Sickboy Podcast succeeds in tearing down the walls of stigma and finds levity in an otherwise dark situation. Taking the lead from Jeremie’s lifelong battle with Cystic Fibrosis, the hosts aim to help people understand that sometimes the best way to deal with illness, disease and life is simply to laugh.
Jeremie is a brilliant speaker, his keynotes having been described as “simply the most thought-provoking, powerful talk I’ve ever witnessed.” CBC released an acclaimed documentary on Jeremie and the Sickboy Podcast in October 2017, just weeks before Jeremie received a rousing standing ovation for his talk at TEDxToronto.
This powerful, laugh-out-loud keynote presentation is definitely a must see experience! Full of wit, wisdom and teachable moments, you don’t want to miss Jeremie’s fresh, raw and unapologetic take on Shifting the Perspective and Stigma around Chronic Illness, Mental Health and Death. We guarantee you will walk away inspired and re-energized with a new outlook and fresh perspective.
THE CARMELITA LAWLOR LECTURESHIP IN PALLIATIVE CARE
MONDAY, APRIL 29, 2019, 4:15 – 5:15 PM
PEDIATRIC PALLIATIVE CARE: IT TAKE’S A VILLAGE
RECIPIENT: DR. ADAM RAPOPORT MD, FECPC, MHSc
The Carmelita Lawlor Lectureship in Palliative Care is made possible by the generous endowment at the University of Toronto established by Carmelita Lawlor who died from cancer. Carmelita was cared for at home by a caregiver team led by Dr. Linda Rapson. The team was the forerunner for Trinity Home Hospice, now known as Hospice Toronto. Carmelita wanted to ensure there was ongoing opportunity to learn about palliative care from well-known and respected people in the field.
Pediatric Palliative Care: It Takes a Village. When pediatric palliative care developed in the 1980s as an offshoot of the “adult” specialty, it was quickly recognized that a tailored approach and skill-set would be required. The emergence of pediatric palliative care specialists meant that children with life-limiting conditions, and their families, had access to clinicians with appropriate expertise. Unfortunately, these specialists were only available at the few pediatric centres across the country.
Over the past 10 years my team has worked to improve pediatric palliative care in our part of Ontario, but we couldn’t have done it without you. We discovered how much more can be offered to families when focus is directed on the similarities, rather than the differences, between adult and pediatric patients. As a result, partnerships with (adult) community palliative care providers have completely transformed the services we now offer families.
THE REFLECTION ROOM®
Sunday, April 28 from 10:00 am to 5:30 pm and Monday, April 29 from 8:30 am – 4:30 pm. SE Health invites you to visit a new version of The Reflection Room® to pause, reflect and share experiences of dying and death. See the collective story that we are all building and add your reflection to the wall. Drop by the Gormley Room, Lower Level. Visit The Reflection Room® online at thereflectionroom.ca
COMPLEMENTARY THERAPY TASTER SESSIONS
One of the highlights of the HPCO Conference are the 15-minute Complementary Therapy “Taster” Sessions where conference participants can sample various complementary therapies on Sunday, April 28 from 10:30 am to 4:30 pm, and on Monday, April 29 from 8:30 am to 4:30 pm. This popular perk provides delegates with increased awareness regarding various complementary therapies and an appreciation for the role of the complementary therapies in the hospice palliative care setting. The “Taster Sessions” will be held in the Buttonville Room on the main floor of the hotel. Take a break and pamper yourself!
RECEPTION & GALA DINNER
MONDAY, APRIL 29, 2019
Reception – 6:00 pm – 7:00 pm/Dinner, Awards and Dancing – 7:00 pm – 11:00 pm
After a delicious dinner and awards presentation, it will be that time of the night…time to hit the dance floor, and we’ve brought in one of Toronto’s Top Event DJs to help us out. With a life-long passion for music and a dedication to the craft, DJ Floh Back is widely considered one of the elite music curators in the Toronto events world. With 20 years’ experience DJ’ing at too many prestigious events and parties to list, guests are impressed by his professionalism, his in-depth knowledge of a variety of music genres, and his ability to keep crowds dancing from beginning to end and you will be too! So get ready to dance, dance, dance.
NEW MEMBER AND STUDENT ORIENTATION
Please join us for light refreshments in the Grand York Ballroom on Sunday, April 28 from 2:15 pm – 2:45 pm. This is the perfect opportunity to learn more about HPCO, meet President & CEO Rick Firth and network with other new members and students. We look forward to seeing you there!